First things first: No matter how isolated you may feel – YOU ARE NOT ALONE. Each year, nearly 25,000 children are diagnosed with diabetes. Every one of these children has parents, relatives, doctors, and/or caretakers that know and love them. Banded together, we can move mountains to ease the struggles our children will encounter.
You have every right to be sad, angry, confused, overwhelmed, weary, and frightened. Chances are, you’re experiencing a kaleidoscope of emotions completely foreign to you. If you are like me, you were blindsided by your child’s diagnosis. Here’s the thing – don’t let your worries hypnotize you into the rabbit hole of despair. Take an hour, a day, or even a week if you need to, but buckle up. Your child needs you for the bumpy ride ahead.
Until your child is somewhat regulated, don’t plan on a good night’s sleep anytime soon. No matter what your child’s age, you are now parent a “newborn” diabetic who needs continual monitoring. Just like your family will need time to adjust to this new development, his or her body will take its own sweet time adapting to life with diabetes. If your child has been diagnosed relatively young, puberty will create a new cavalcade of adjustments. The same goes for any childhood illness, such as a cold or the flu. Alert your friends and relatives to the situation, realize that your brain may be foggy from time to time, and understand you will get through it.
Please, please don’t base your child’s identity on this diagnosis. Your son or daughter may be an artist, athlete, or scientist. Let him or her continue to be known for their wicked sense of humor, love for animals, or competitive drive. You are still raising the same child that existed before you encountered diabetes. Don’t let this condition douse your child’s dreams and aspirations. Yes, you need to acknowledge and deal with it daily – and, by no means – should you ignore it. BUT, it doesn’t have to be your child’s definition. It doesn’t have to overtake his or her personality. There is no time for resentment. Teach the attitude of modification, not victimization. You’d be surprised how freeing that can be.
In case you haven’t realized it yet – YOU ARE YOUR CHILD’S NUMBER ONE ADVOCATE. You need to be vigilant, informed, and proactive. Unfortunately, it’s only a matter of time before you encounter an ignorant comment, antagonistic school environment, or even an unsympathetic doctor. Do your research, be prepared, and respectfully stand your ground whenever the well-being of your child is endangered.
Take heart – there have been amazing developments in the treatment of diabetes. What used to be considered an immediate death sentence can now be managed for multiple decades. The average lifespan of a diabetic has increased significantly in recent years. Regretfully, it still is a life-altering condition and there is no cure, but hope looms on the horizon. Mind-blowing advancements are just around the corner. We must not give up our quest to make this disease a distant memory.
You may have noticed I’ve shied away from the medical dos and don’ts. You will get plenty of those from your child’s endocrinology team. What I wanted to convey was a list of things I wish I was told nearly 20 years ago when my son was first diagnosed. My main piece of advice is to cultivate all the assistance you can. Reach out to your friends and family. Contact the American Diabetes Association or the Juvenile Diabetes Research Foundation for information. Join a support group if you’d like. Take my recommendations or tell me to shove it. Whatever works to aid you on this journey your family is now embarking upon.
I’m not going to sugar coat it – the excursion is long and treacherous, but it can be navigated. Look positively towards the future. Train your child to be their own warrior. Take joy in daily conquests and never look back.
This post originally appeared on TheMighty.com.